JOIN THE FIGHT FOR ZACH!
We’re in a fight, and could use your help. Every item or raffle bought raises money to save Zach’s life!
And if you would simply like to donate towards Zach’s fight, we have options for international donations, corporate donations with Section 18A options, as well as direct donations to Zach’s account.
Join us in this fight
We have had amazing people and organisations rally around us to help raise funds. Take a look at what we have available.
Why the Fight?
Standing against injustice…
Zach has an incredibly rare disease that progressively deteriorates his body and livelihood. There is a treatment available that could SIGNIFICANTLY extend his lifespan and improve his quality of life.
Zach was diagnosed with MPS II (Mucopolysaccharidosis Type 2) also known as Hunters Syndrome shortly before his 2nd birthday. This, while devastating, was the best possible timing we could have hoped for.
MPS II is not curable, but the sooner Zach gets the treatment, the slower this debilitating disease will ravage his body. This could take his expected lifespan from 13 years to upwards of 50 years.
The Medical Aid, however, doesn’t seem to agree…This is why we are asking for your help.
Because of the long CMS processes and degenerative nature of MPS II, we sought an interim order for the Medical Aid to pay for Zach’s treatment, until such a time as the final CMS ruling was made. This was ruled in Zach’s favour. However no more than 3 months into his treatment, the Medical Aid erroneously halted payment for Zach’s treatment citing that the interim order had run its course.
We have been back to court on numerous occasions to prove that the interim order should still be in effect, each time has been voted in Zach’s favour. However the Medical Aid is dragging out their compliance by taking us to court…and then some.
We now find ourselves in a place where legal fees are urgently required to fight this battle. We have had incredible help thus far, but still have a long way to go.
Follow Zach’s journey HERE.
Assorted MerchÂ
All proceeds go to our Fight for Zach
